An expansion of ASH’s commitment to identify and confront unmet needs in SCD patient care, these guidelines will be created with input from physicians and patients to address the unique needs of this underserved patient population.An inherited, lifelong chronic disorder affecting nearly 100,000 Americans, SCD is characterized by rigid, sickle-shaped red blood cells that stick to blood vessels, blocking blood flow.New Resources CDC – Sickle Cell Fact sheets to download and print at: https://gov/ncbddd/sicklecell/materials/Int J Adolesc Med Health. pii: /j/ijamh.ahead-of-print/ijamh-2017-0004/ijamh-2017-0004 Rodgers-Melnick SN1, Pell TJG1, Lane D1, Jenerette C1, Fu P1, Margevicius S1, Little JA1.Abstract Background The Build, Educate, Advance, Transition, in Sickle cell disease (BEATS) music therapy program was developed to address health challenges faced by adolescents/young adults (AYA) with sickle cell disease (SCD) during the transition to adult medical care.So, many of those suffering from sickle cell anemia are prescribed a variety of powerful pain killer derivatives.
These guidelines are part of a broader ASH commitment to conquer SCD worldwide.
With only one FDA-approved treatment and no widely available cure, life is extremely challenging for people with SCD.
Pain — both chronic and acute — is common and results in tremendous suffering and difficulty continuing daily activities like work or school.
The Society is in the midst of developing a consortium of sub-Saharan African countries to address newborn screening and early intervention.
The consortium would introduce standard-of-care practices for screening and early intervention therapies at participating institutions, with the goal of decreasing childhood mortality rates for SCD.